Wereld MS Dag 2017

D O E  J I J  O O K  M E E  ? ?

Aankomende woensdag is het #WereldMSdag en daarom roepen we jullie allemaal op om op woensdag 31 mei massaal onderstaande boodschap te delen op Facebook, Instagram en Twitter!

“Ik laat mij niet kisten door #MS en steun #WereldMSdag 2017! #ikenMS!”

Helpen jullie mee? En delen jullie aankomende woensdag ook bovenstaande boodschap inclusief een gave persoonlijke foto?

Uiteraard mag je de boodschap personaliseren, als je de hashtags #WereldMSdag #ikenMS en #LifewithMS maar gebruikt!

Natuurlijk mag je deze boodschap nu al zoveel mogelijk delen! Graag zelfs!

#ikenMS

Gisteravond heb ik het al even gepolst op Facebook of mensen geïnteresseerd zijn om op Wereld MS Dag een gezamenlijke, persoonlijke boodschap te willen delen op social media.
Allemaal dezelfde boodschap inclusief een persoonlijke foto. Zodat we op die ene dag laten zien dat wij ons niet laten kisten.
De reacties waren én zijn veelbelovend!
Wil je ook mee doen? Houd dan de Facebook van Platform MS in de gaten!

Zorgen doen…

Mijn schoonmoeder heeft een overzicht van Loesje-uitspraken aan de muur hangen. En één uitspraak staat mij altijd zo bij;

Zorgen moet je doen

Niet maken…

Ik zorg ook altijd voor mijn vrouw. Dat vind ik fijn om te doen. Maar zoals vandaag heeft zij weer een lichamelijk ‘dingetje’. Dat vind ik dan moeilijk. Moeilijk omdat ik het niet kan oplossen. Ik kan haar niet helpen. En hoe voel je je als je iemand niet kan helpen..?

#Machteloos

Gevallen

Ken jij dat? Je gaat naar een feestje, je drinkt een paar wijntjes en je fietst weer naar huis toe en bij het stoplicht verlies je je evenwicht en, hop, daar lig je…
MS gerelateerd?

Mijn blog…

Helaas moet ik melden dat ik de laatste tijd niet zoveel meer deel. Dit heeft te maken met het feit dat ik het druk heb met een andere website. En omdat ik graag mijn vrije tijd spendeer met mijn gezin. Mijn vrouw en dochter zijn het allerbelangrijkste in mijn leven.
Hierdoor is mijn blog wat minder belangrijk geworden voor mij. En dat vind ik eigenlijk best wel jammer. Mede omdat dit blog de aanleiding is geweest van alle andere activiteiten. Door dit blog schrijf ik nu voor MSweb. Door dit blog ben ik gevraagd om mee te werken aan de allereerste MSHackathon. Door dit blog heb ik een nieuwe MS community opgericht welke maandelijks door duizenden mensen wordt bezocht.
Het is gewoon freaking bizar wat dit blog allemaal heeft veroorzaakt. Nieuwe vriendschappen, nieuwe blogs, nieuwe inzichten etc. Ik beloof dat ik snel weer meer zal schrijven! Tot snel!

Calm over the horizon

Many years ago, I worked for my parents who own a video production company. Because it is a family business, you inevitably end up wearing many hats and being the czar of many different jobs. I mainly managed projects and worked as a video editor. On production, there were times that I was called on to work as an audio tech and was made to wear headphones on long production days. In those days, having a really good set of headphones that picked up every nuance of sound was essential to making sure the client got what they needed.

First impressions.

Naturally, my first impression of these headphones is based off of the look of them. They have a classic over-the-ear style that is highlighted by a blue LED light that indicates the power for the noise canceling. The padding on the ear pieces seems adequate for extended usage periods.

They are wired headphones, but the 3.5mm stereo mini-plug cable is detachable. Something else I noticed right of the bat was the very nice carrying case that comes with them. It has a hard plastic exterior with a soft cloth interior that helps to protect the surface of the headphones from scratches. I never truly appreciated cases for headphones until I started carrying them from place-to-place. Now I can’t imagine not having a case.

A perfect fit.

Once I gave the headphones a thorough once-over exam, I tried them on. As I mentioned, they have a classic over-the-ear style and just looking at them, the padding on the ear pieces seem adequate and the peak of the headband seemed to be a bit lacking, but you don’t really know comfort unless you try on the product. So, I slipped the headphones on and found them to be exquisitely comfortable.

Quality.

Now that I had the headphones on my head, I was finally ready to plug and play some music. I plugged the provided cable into the jack on the headphones and then the one on my iPhone 6. Then I called up Pandora. I tend to have a very eclectic music purview and have many stations set up for different moods. From John Williams to Fallout Boy, the sound quality of these headphones was remarkable. There is an amazing depth of sound and incredible highs and lows that make listening to music a truly breathtaking experience.

It’s safe to say that because of my unique professional experiences, I’ve tested out a lot of headphones.

In order to test how voices sounded, and the overall art of sound mixing, I pulled up Netflix on my iPad Air 2 and watched a few minutes of a movie to hear all the nuances of the film. None of them were lost. In fact, I ended up hearing sounds that I hadn’t heard before. Echoes…birds chirping…wind blowing through trees…breathing of the characters…it was very impressive what the headphones ended up bringing out for me.

I would highly recommend these to any sound mixing specialist.

MS One to One

Vandaag is het zover. Het allereerste magazine van MS One to One ligt in de brievenbus. En mijn verhaal staat erin. Zoals je bovenstaand kunt zien, staat mijn naam ook nog eens vermeld op de voorpagina.
Volgende punt; met foto op de voorpagina…

Inspired by clouds

This is custom heading element

I’ve got a Fujifilm X100s. It runs about $1300. It’s easily the best camera I’ve ever owned. I take care of it as best as I can, but I don’t let taking care of it impact the photography. Let me elaborate on that a bit better. You’ll get better at each section of what we talked about slowly. And while you do, you’ll be amazed at how much easier it all is and how the habit forms. The best way to get better at photography is start by taking your camera everywhere. If you leave your house, your camera leaves with you. The only exception is if you’re planning for a weekend bender — then probably leave it at home. Other than that, always have it slung over your shoulder. It would probably help to get an extra battery to carry in your pocket. I’ve got three batteries. One in my camera, one in my pocket, one in the charger.

When it dies, swap them all.

For me, the most important part of improving at photography has been sharing it. Sign up for an Exposure account, or post regularly to Tumblr, or both. Tell people you’re trying to get better at photography. Talk about it. When you talk about it, other people get excited about it. They’ll come on photo walks with you. They’ll pose for portraits. They’ll buy your prints, zines, whatever.

This is custom heading element

This is custom heading element

I’ve got a Fujifilm X100s. It runs about $1300. It’s easily the best camera I’ve ever owned. I take care of it as best as I can, but I don’t let taking care of it impact the photography. Let me elaborate on that a bit better. You’ll get better at each section of what we talked about slowly. And while you do, you’ll be amazed at how much easier it all is and how the habit forms. The best way to get better at photography is start by taking your camera everywhere. If you leave your house, your camera leaves with you. The only exception is if you’re planning for a weekend bender — then probably leave it at home. Other than that, always have it slung over your shoulder. It would probably help to get an extra battery to carry in your pocket. I’ve got three batteries. One in my camera, one in my pocket, one in the charger. When it dies, swap them all.

For me, the most important part of improving at photography has been sharing it. Sign up for an Exposure account, or post regularly to Tumblr, or both. Tell people you’re trying to get better at photography. Talk about it. When you talk about it, other people get excited about it. They’ll come on photo walks with you. They’ll pose for portraits. They’ll buy your prints, zines, whatever.

This is custom heading element

This is custom heading element

The best way to get better at photography is start by taking your camera everywhere. If you leave your house, your camera leaves with you. The only exception is if you’re planning for a weekend bender — then probably leave it at home. Other than that, always have it slung over your shoulder. It would probably help to get an extra battery to carry in your pocket. I’ve got three batteries. One in my camera, one in my pocket, one in the charger. When it dies, swap them all.

For me, the most important part of improving at photography has been sharing it. Sign up for an Exposure account, or post regularly to Tumblr, or both. Tell people you’re trying to get better at photography. Talk about it. When you talk about it, other people get excited about it. They’ll come on photo walks with you. They’ll pose for portraits. They’ll buy your prints, zines, whatever. I’ve got a Fujifilm X100s. It runs about $1300.

It’s easily the best camera I’ve ever owned. I take care of it as best as I can, but I don’t let taking care of it impact the photography. Let me elaborate on that a bit better. You’ll get better at each section of what we talked about slowly. And while you do, you’ll be amazed at how much easier it all is and how the habit forms.

This is custom heading element

This is custom heading element

The best way to get better at photography is start by taking your camera everywhere. If you leave your house, your camera leaves with you. The only exception is if you’re planning for a weekend bender — then probably leave it at home. Other than that, always have it slung over your shoulder. It would probably help to get an extra battery to carry in your pocket. I’ve got three batteries. One in my camera, one in my pocket, one in the charger. When it dies, swap them all.

I’ve got a Fujifilm X100s. It runs about $1300. It’s easily the best camera I’ve ever owned. I take care of it as best as I can, but I don’t let taking care of it impact the photography. Let me elaborate on that a bit better. You’ll get better at each section of what we talked about slowly. And while you do, you’ll be amazed at how much easier it all is and how the habit forms.

For me, the most important part of improving at photography has been sharing it. Sign up for an Exposure account, or post regularly to Tumblr, or both. Tell people you’re trying to get better at photography. Talk about it. When you talk about it, other people get excited about it. They’ll come on photo walks with you. They’ll pose for portraits. They’ll buy your prints, zines, whatever.

Photography is better shared.

Pseudo schub…

Ken je dat? Pseudo schub? Dat is pas een achterlijk monstertje. Je hebt alle symptomen van een MS aanval maar deze is niet zichtbaar op de MRI. Er zijn geen nieuwe ontstekingen maar zo voelt het wel.
Volgens mij heeft mijn vrouw hier ook last van. Ze heeft symptomen van een schub maar deze waren niet te zien op de MRI.
Ach, dat is het fijne van MS. Je weet het niet… 😉